Today has been one of those days where my mind, body and energy have all had differing ideas
of how the day will go !
Making plans to do something is a thing of the past
I now live my life day to day , hour to hour it is the only way I can cope with things
In past years I would make plans and my body would make me have to change them
Before my diagnosis I felt like a walking medical conundrum
skin problems
bowel problems
headaches
migraines
osteo arthritis
tremors
weakness
fatigue
insomnia
pain so much pain
PTSD
depression
ohhh the list was endless.
These days there is a name for whats wrong with me.
On the outside I look fine
yes I am in a wheelchair and boy do I get some strange looks!
I have had people say oh my so & so has MS they can walk and they do this that and everything
or they have good days and bad but they are not like you
In all honesty what do people actually know?????
I have MS and I don't fully understand what it does to the body and why!
Why me ? what did I do to be like this ??
Put 50 MS sufferers in a room and no 2 people in that room will have the exact same symptoms of MS
I cant get my head round it,
I hurt, I'm tired and my brain won't stop !
MS I HATE YOU !
I would like a day off please just so I can rest
and get into perspective the highs and lows
make my peace with the life I now live
MS you are pissing me off
but I accept you a part of my life and you will make me mad
you piss me off
grind me down
BUT ...........
YOU WILL NEVER BEAT ME !!
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